Diabetes Blog Week: Share and Don’t Share

I’m taking part in the Diabetes Blog Week this week, which means I will (hopefully) bring you a new blog post every day about my experiences with Type One Diabetes!

Todays topic is:

Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like.  Today, let’s pretend our medical team is reading our blogs.  What do you wish they could see about your and/or your loved one’s daily life with diabetes?  On the other hand, what do you hope they don’t see? 

I see my Endo, perhaps twice a year, three times if I’m lucky. I see a Diabetic Educator about the same amount of times. My Endo and Diabetic Educator (DE) are at two opposite ends of the spectrum. My endo is practical, succinct and matter of fact. My DE is bubbly, supportive and helpful. When I first moved to Brisbane, I had a different endo, and I loved her to pieces. She was so supportive and helpful, right at the time I needed it most. I’d barely been diagnosed a year and she taught me a lot about diabetes and how to care for myself. She was responsible for me going on an insulin pump and helping me through the process. Unlucky for me, she moved overseas.

My current endo is good. I mean, he’s obviously great at his job, but I don’t connect with him the way I did with my first endo. But at the same time I feel like I have a lot better understanding of my autoimmune disease, and the appointments are more routine than supportive like I needed before.

Sometimes I feel like the amount of effort I put into the management of my diabetes isn’t noticed by my endo. I wish that my team could see that I really do try to manage my diabetes the best I can. I wish that they could see my BSL readings so I didn’t have to either record them or upload them onto my computer (because I invariably forget!). I wish that they could see a continuous monitoring of my BSLs so I didn’t have to record things or say vague things like ‘I think that my BSL are higher in the mornings…but oh, maybe actually, sometimes they are high, so I don’t know?’. I wish they could bloody well see my basal testing, without me having to actually do it!

There are a lot of things I hope they never see. I don’t change my finger pricker needle every time I test….
I leave my sites in too long sometimes (ok, most of the time)…I don’t test enough…

Most of all, I hope they don’t see how forgetful I’ve become of it. In the last year, on three separate trips away from home I’ve forgotten something vital (insulin or new cannulas).

All in all, I’m very grateful for the wonderful doctors and specialists I have come in contact since diagnosis. I have learnt a lot, and I am extremely grateful for the insights they can provide into my short and long term health.

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One thought on “Diabetes Blog Week: Share and Don’t Share

  1. I’m right there with you! I always dread telling the docs how often I change my infusion site because it’s never as frequent as it should be! And embarrassingly I don’t change my lancets very often at all.

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