Diabetes Blog Week: We the Undersigned

Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of inDpendence for this topic suggestion.)

 

I started writing about how I wanted to change people’s perceptions and how everyone has their own opinion of diabetes: ‘you shouldn’t eat that’, ‘I’m going to go into a diabetic coma if I eat that much sugar’, or my personal favourite ‘you must haven eaten a lot of sugar as a child’.

As I start typing, I realised that I would change the name. Diabetes. Not only am I sick to death of hearing that word, more importantly I think that identifying diabetes as either Type One Diabetes or a Type Two Diabetes gives everyone the idea that they are related. Sure, in a way they are, but in a lot of ways they aren’t even the same condition. No wonder the general public have a negative perception of ‘diabetes’. Most people don’t even know the difference between T1 and T2. And with both regularly referred to as just ‘diabetes’ its no wonder!

I can’t help that I have T1, but it would be nice for it to be called something else, something not already well known so that when someone asks me ‘what’s that?’ when referring to my insulin pump I could say ‘it’s for my ______’. Then perhaps, people might be interested and listen instead of jumping in with whatever their sisters’ friends’ boyfriends’ uncle knew about his daughters’ friends’ mother’ diabetes. You get my drift.

(I’m being a bit negative, there are some fantastic people out there that are genuinely interested).

Advertisements

6 thoughts on “Diabetes Blog Week: We the Undersigned

  1. Thank you for sharing. We don’t mind negativity. We all feel it. I started by post today with the same idea. I only changed it because I read it to my BF and he was like, ‘why not try and be funny’ and then i kicked him a little and agreed to change it.

    Any way, I think there is a really great point made by Manny Hernandez on this front on the DiabetesHandsFoundation blog. Here is a link to it.

    http://www.diabeteshandsfoundation.org/2013/04/lets-come-out-of-the-diabetes-cave-together/

    I have felt very swallowed up by the diabetes term. I totally get it. But I also LOVE the change in expression when I begin to educate the offerer of “you got diabetes because you ate too much sugar”. I like advocating for diabetes education. If there were separate names, maybe we wouldn’t have to work so hard to explain it, thus losing a lot of diabetes jobs out there.

    I enjoy your voice. Thank you for being honest and truthful.

  2. Jeanette Collier and I are the authors of the petition to revise the names of the type classifications of T1&T2. We completely understand your sentiments. In response to Manny’s blog posted above, we totally agree that we are all in this together. That’s the thing about our petition- its about improving awareness, education and fundraising for all types of D. Its not about removing T1 from D- just descriptive names that mean something. Here is a very nice blog discussing the opposition:

    http://www.irunoninsulin.com/?p=7213

    Also, there are some very respectable members of the D community included among our nearly 3,700 supporters:

    Dr. Camillo Ricordi, Scientific Director and Chief Academic Officer- Diabetes Research Institute (DRI)
    Scott R. King, President, CEO and Founder, Islet Sheet Medical LLC, in association with Hanuman Medical Foundation
    Dr. Stephen Ponder, Pediatric Endocrinologist, Medical Director Texas Lions Camp
    Dr. David L. Katz, Director of The Yale University Prevention Center
    Riva Greenberg, Speaker, Author and Health Coach
    Theresa Garnero, Diabetes Nurse Educator, Author, and Speaker
    Barbara J. Anderson, Ph.D., Professor of Pediatrics, Associate Head, Psychology Section, Baylor College of Medicine
    Bret Michaels, via Life Rocks Foundation
    Miguel Paludo, NASCAR Driver and Diabetes Advocate
    Brenda Novak, Best Selling Author and Diabetes Advocate
    Robert A. Pearlman, President & CEO, Diabetes Research Institute Foundation (DRIF)
    Moira McCarthy, Journalist/Author and JDRF Volunteer & Outreach Speaker
    Dr. G. Prakasam, Pediatric Endocrinologist, Founder/President Center of Excellence in Diabetes & Endocrinology (CEDE), past Chapter President and Board Member of ADA

    Kerry Sparling from Six Until Me has added her signature as well.

    This is our chance to force the Expert Committee to rectify the disservice they did us all by settling on numbers instead names.

    http://www.change.org/petitions/revise-names-of-type-1-2-diabetes-to-reflect-the-nature-of-each-disease

    Thanks for letting me comment.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s